It’s been a year,what a change – my wife inspired this one

(September 19, 2019) Dave, it’s hard to believe that just one year ago today was your first day of dialysis. You were one of those whose life was saved by your dear friend Greg, who gave one of his own kidneys in the Paired Donor Exchange.

Greg gave his kidney to a stranger as he wasn’t a match for you. Another living donor gave their kidney to you on April 24, 2019. What a gift and truly the gift of life. People die while waiting for a transplant. Dave is blessed and so are we. (written by my dear wife Susan)

Her Facebook post written one year ago follows below: 

 

(September 19, 2018) Today was a difficult day as Dave started hemodialysis.

It wasn’t planned for today but was planned soon. It became necessary as his GFR was at 6 and his body was failing him. Normal GFR is above 60.

Although we’ve been through this a long time ago, it was still heart wrenching. The two hour dialysis took 2.3 litres of fluid off his body today.

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Dave’s first day of dialysis since 1987. He has been on dialysis twice before, hemodialysis and peritoneal dialysis. They cover him with warmed up blankets as the blood comes back cooler into him after being pumped through the machine.

Tomorrow he will be there three hours and they will take 3 litres off.

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Dave’s dialysis machine, his blood is being pumped through.

Then on Saturday four hours of dialysis and maybe 2 litres or more until they find his  “dry” weight.

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This is the machine’s artificial kidney removing fluids and toxins as the blood is pumped through it.  He can live about 8 years on dialysis with severe restrictions on diet and fluids, since he can’t produce urine due to his kidney failure.

Four hours of dialysis three times a week will be his new normal.

 

In all 10 litres of fluid or more needs to come off his body.

 

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Dave’s arm, a vein is enlarged by surgery do he can use large tubes otherwise it would take 16 hours each time.  At the wrist a tube takes the blood out and by the elbow it is returned.

We are hoping and praying he gets on the transplant list in October.

 

From August on Dave has been struggling to live as his body has been failing him. It occurred to me that his body was killing him a little more every day.

 

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A close up of the machine monitoring his 4 hour treatment, just 14 minutes left this time.

We also hold on to the hope of better days ahead.

 

There were tears today of letting go and giving in but not giving up. We’re both just tired today.

 

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Dave looks resigned and resigned to be positive after 31 years of life without dialysis.  Hopefully a donor will be found for him and someone will donate a kidney to make one available to him.

Dialysis will keep Dave alive while we wait for a transplant to go ahead. Please keep Dave in your prayers.

 

Canada has a low rate of organ donation and I hope by sharing this that it raises awareness.

Dave has lived over 30 years on one kidney.

If a living donor donates a kidney in a paired exchange and they ever get sick they immediately rise to the top of the transplant list because of their donation.

You are welcome to please share this post to raise awareness.

Dave’s note: Most lives have some bumps in them, and have times when the future looks bleak. I know that is exactly how I felt a year ago. My wish is that someone will read this post and realize if they are going through a tough period, that the future is unknown to us, so try to hang in there and not lose hope. Everything can change in a year.

About dfolstad58

I live in the South Okanagan. BC. I enjoy reading, exercise, toastmasters. spending time with my son, my daughter, & her husband , and my patient wife. I try to respond personally to every comment on my blog, and in this way I hope to get to know my readers a little bit and say thank you for their encouragement and suggestions.
This entry was posted in health, Some of my favorite posts and tagged , , , , , . Bookmark the permalink.

21 Responses to It’s been a year,what a change – my wife inspired this one

  1. Simply Pao says:

    God bless you with many more years to come!

    Like

  2. Hi. I’m glad to know that things have worked out for you. Take care —
    Neil Scheinin

    Like

    • dfolstad58 says:

      Thank you Neil, i am grateful and know how fortunate i have been to receive a 3rd transplant at my age. It would not have been possible if a friend hadn’t donated to someone else in Ontario so I would be eligible.

      Liked by 1 person

  3. Alexis Rose says:

    Continue to Hang in there!

    Like

  4. Dave, I am so happy that a donor found you. A good friend of mine is also on dialysis and I offered a kidney, but found out in the process that I have some difficulties in that area myself. I am below 60.
    Good health to you and your donor. 🙂

    Like

  5. Joni says:

    I wondered how that living donor thing worked – nice to know such generous people can go to the top of the list!

    Liked by 1 person

  6. Claudette says:

    What a great way to communicate this important message. Happy to see you back in the blog. 🙂

    Liked by 1 person

    • dfolstad58 says:

      Thank you, I have been bingeing on Murdoch Mysteries and mainly didn’t know what to share. I am trying to get a few last swims in the lakes but they are getting nippy! My son joins me and then we have a bonfire.

      Like

  7. Lynn says:

    Wishing you continued good health Dave! Such an important reminder about organ donation!

    Like

  8. This was hard for me to read Dave. My Dad died of kidney failure. He was 80, a double amputee and diabetic, and so sick and so tired of fighting his disease that he opted out of dialysis after just a few treatments. Of course he wasn’t eligible for a transplant. He only survived for seven days without treatment, and the down ward slide was horrible.
    So you see my friend, I am so happy for you that you got your transplant and that you are doing well, but I also know that the struggle for you and your loved ones was profound.
    And I think your friend Greg is a real hero and a fine human being. God bless you all.

    Liked by 1 person

    • dfolstad58 says:

      I am grateful you shared about your Dad. I am sure he left a big hole in your life, that is a tough way to pass.
      My Mom passed last June and I dread losing my Dad.
      You do truly understand about dialysis, it’s not a cure and it bothers me that so few people understand or make an effort to understand what dialysis means to the patient trying to survive.
      When I visit the hospital, which is often, I always go to the dialysis unit to say hello to the nurses, they were so empathetic as they put the needles in and out, and brought me warm blankets when I was freezing (you lose heat through your blood being cycled through). I wave hello and say hi to the patients I know, and I know for some of them, actually most of them, there are no transplants being considered. They are so brave.
      It means a great deal to me knowing you understand, I did dialysis for years prior to 1986 and for 30 years after receiving my transplant I still dreamed about the experience and it always shook me awake.
      God bless you Ilona my friend.

      Liked by 1 person

  9. cindy knoke says:

    Gives me goosebumps. I used to do a group for young (teenage) dialysis patients years ago. I still hear from two of them. Their scars match their courage. And your post brings tears. Love to you.

    Like

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